n this video you will find basic information about the disease: that What, where and how to treat it in Italy. Help us to disclose this information because by the time these children is essential, and the problem of all is that rare diseases are often not being little known diagosticate at birth or (unfortunately) not the doctors who treat them normally, give information or even obsolete incorrect. As a group we want parents to disclose as much information as possible and offer our support to those who find themselves in a difficult time of diagnosis. Therefore, anyone who needed or wanted to support our cause is within the group fb Rare Diseases: craniosynostosis. Louise & all other
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